IGHC International Genetics & Health Collaboratory
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Collaborative Research
-- Implementing social, ethical, and legal safeguards
Data collection and database maintenance are expensive activities. Sharing information between researchers, organizations, and disciplines, therefore, makes economic as well as scientific sense. But there are also major social, ethical, and legal benefits to be gained through the development of research collaboratories focusing on genetics and health.

Through collaborative management of scientific information kept in participating networked databases, researchers can be directly-and constructively-proactive in implementing proper ethical, legal, and social protocols, standards, and safeguards.

When collaborators thus effectively "self-regulate" what is made of the information they are gathering, there may be little future need for federally mandated prohibitions and complex bureaucratic regulations.

The scientific and public environments within which the best research today is being done in many disciplines is rapidly evolving. IGHC is developing a series of innovative workshops to explore how ethical, legal, and social safeguards may be effectively implemented while solving the technical and organizational aspects of networking large, sophisticated multi-site databases of complex interdisciplinary information. 

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